Sunday, March 24, 2013

Third Round- Still not out

Finished the second round with a fury of side effects. Down and out for four days but recovered well thereafter. I was able to go to the SEC tourney in Nashville and shoot pics throughout the games. A great time with fellow photographers. The tourney was exciting to say the least.

The third round began thursday March 21, 2013. My oncologist changed Oxaliplatin to Irinotecan. Too many side effects with the former. These included the usual N/V but a mild form of optic neuritis. I went blind for awhile and began to see through a small opening in the center of the eye. Peripheral neuropathy was crippling and thus unable to walk.

This round was terrible the first day but since a slow progressive feeling of strength and eating better. I lean heavily to the sayings of friends and authors, ill share a few:


“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen.”

“Never to suffer would never to have been blessed.”

“You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.”

“Adversity is like a strong wind. I don't mean just that it holds us back from places we might otherwise go. It also tears away from us all but the things that cannot be torn, so that afterward we see ourselves as we really are, and not merely as we might like to be.”

“If our testimonies are strong onthis point and if we feel the absolute assurance that God loves us, we will change our questons. We won't ask, 'Why did this happen?' or 'Why doesn't God care about me?' Instead, our questions will become, 'What can I learn from this experience?' or 'How does the Lord want me to handle this?”

Through adversity, anyones adversity, I pray for mine and their Strength, Peace, Encouragement!
Psalms 29:11 The Lord gives his people strength. The Lord blesses them with peace.

Psalm 16: 7-8 In the midst of my groanings the Lord counsels me; even at night my heart instructs me. With Him at my right hand I will not be shaken!

Thank you all for incredible support. Baptist Health Richmond recently has Orange day for my cause. Incredibly humbling. It truly gives strength and courage to plow through these tough times and look forward to starting work again.

Family support is unwavering! Their strength, encouragement and prayer daily is my strength and makes all things focused on what amazing things the Lord is doing.

Thank you, as always
Your friend
Bo Morris



 

Sunday, March 17, 2013

Games are over- A game changer is in town


Games are over, A new game changer has arrived.

Basketball season is winding down. I was delighted to be able to take pictures at the SEC. A lot of celebration and congratulations to those very good athletes. A few Pics for the curious:












Chemotherapy game- changer for stage 4 cancer

GTF (Genetically Targeted Fractionated Chemotherapy) may help patients outperform conventional chemotherapy by identifying each person’s specific tumor information and genetic profile.

The current model and approach being used by numerous cancer centers and hospitals is the “germ theory.” This model aims to focus on destroying cancer cells using a “one size fits all” protocol – a methodology which establishes treatment plans based solely upon cancer type and stage. Doctors are content that each person’s cancer is unique, thereby cannot be classified or grouped – even for patients with “the same type and stage.”

New scientific studies reveal that unlocking the genetic codes for each patient’s cancer means a more successful treatment and outcome. GTF treatment goes several steps further than the conventional chemotherapy approach. It takes advantage of the understanding that everyone’s tumor is different and provides the actual blueprint information to personalize each patient’s treatment plan.

Currently, the odds that a patient will respond to any given chemotherapy treatment are generally no better than the odds of flipping a coin. Chemotherapy drugs have historically been tested, dosed, and incorporated into treatment protocols based on trial-and-error approaches, resulting in a single or a range of recommended dosages based on averages from clinical studies in large populations.

The cancer patients who continue to receive chemotherapy drugs that they simply don’t respond to are unknowingly suffering through devastating side effects all while simultaneously wasting valuable time in their fight to survive against cancer.

The good news is that recent advances in pharmacogenetic research may eliminate the randomness in chemotherapy treatment. Through genetic testing, specific gene expression patterns can be identified that can better predict a patient’s drug response. These genetic indicators act to help physicians find the optimal drug or drug combination that will combat the precise tumor in a given individual with the benefit of optimal results along with greatly reduced side effects.
These ideas are stimulating discussions with my oncologist. I encourage others to do the same.

Thank you so much for the Orange day. Incredible! My family and I are so grateful for your friendship.

Psalm 133:1- How good and pleasant it is when God’s people live together in unity!
As always, your friend
Bo Morris



Tuesday, March 12, 2013

On and Off- Blessings that illness brings

On for two weeks with oral chemo and Off one week. Then IV infusion of irinotecan a new Rx next week. It's the only door to go through and I must travel on with this journey.


Irinotecan (Camptosar, Pfizer; Campto, Yakult Honsha) is a drug used for the treatment of cancer.
Irinotecan prevents DNA from unwinding by inhibition of topoisomerase 1. In chemical terms, it is a semisynthetic analogue of the natural alkaloid camptothecin.
Its main use is in colon cancer, in particular, in combination with other chemotherapy agents. This includes the regimen FOLFIRI, which consists of infusional 5-fluorouracil, leucovorin, and irinotecan.

From listening to Christians suffering with illness I do believe that God sends us mysterious blessings that come along with our suffering. Here are just a few that are confronting me at this time.

- Illness teaches us to number our days. Psalm 90:12, Without illness it is easy to delude ourselves into assuming that we will live our earthly lives forever. We color our hair and exercise the aging but forget that our lives are a mist that appears for a little while and then vanishes, James 4:14.

- Illness can be a means of spiritual growth. James 1:2-3 helps soften our objectives to suffering in that Consider it a Joy whenever you face trials (illness included). The testing of the faith develops perseverance so that we may be mature and complete.

- Illness teaches how to comfort others in their distress. Paul states Praise be to God who comforts us in all our troubles, so that we can comfort those in any trouble. Many have begun a significant ministry only after suffering a major illness.

- Illness gives us a new perspective on our mistakes. Sometimes illness enables us to see or understand our circumstances differently than before. While God does not wish illness upon us, He can use it to lead us gently to our sins and then heal us of them.

- Illness is only temporary. The Lord may choose to heal us through the hand of a human physician or He may reserve that privilege for His own personal touch when we see Him face to face.

Excerts from Today's Christian Woman 1988

Once again Thank all of you for your love and unwavering support. An amazing journey to see.
Always your friend
Bo Morris


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Thursday, March 7, 2013

Round Two

The poignant anxiety felt with chemo is quickly brought lower when I gaze on this painting and throughout the therapy reminds me of Sophia, my grand daughter. This round had some kick to it. The Oncologist stated that there would be an additive affect. The second through the fourth day after have been the lowest points in my life. In addition to the many side effects experienced the psychological mind games also came into play. It has been terribly difficult to remain positive for myself and family through this deliberate poisoning. This envenom is not a magic bullet to the tumor. This stuff stops DNA from replicating everywhere. The brain and GI track that is actively changing does not like it and rebels, thus side effects. Enough-negativity

As this painting depicts, I have not felt well, thus a delay in the blog. I cannot emphasize enough that exercise is helping me. I have begun a compulsive process to remind myself to:

  • Keep moving: stretching, short walks, recumbent bike
  • Keep a log of how I feel each day. prior to infusion, after infusion and all subsequent days
  • Create simple goals: One of my important goals is not to compare myself to pre-chemotherapy.
  • Try not to set myself up for feeling bad about myself. I am not going to feel as strong as I did before, while chemo is being pursued.
  • Eat healthy: I have found a quick way out and eat a candy bar several times a day. The energy is quick but ultimately is not healthy. I will pursue a different lifestyle quickly !!
  • Eat something: Bland diet is better during the infusion week and the days that follow. This week has been an experiment.
  • Do more of what you love: Ride my bike-not yet but its coming (Trek Modone 5.2), Pictures of sports, Pictures of landscapes and weddings.
Psalm 16:7-8 I will not be shaken with Him at my right hand. The Lord counsels me and even at night my heart instructs me.

Thank you all for the loving support. I truly am blessed
Sincerely
And always your friend
Bo